GenIDA: Genetically determined
Intellectual Disabilities and Autism Spectrum Disorders

A website for Patients, Families and Professionals

You can register on GenIDA if:

  • ✔ One of your child, brothers, sisters or close relatives has manifestations of intellectual disabilities (ID) and / or autism spectrum disorders (ASD).

  • ✔ She/he has been diagnosed as carrier of a genetic mutation affecting a single gene or a small chromosomal segment and it has been concluded by a specialist that this mutation is responsible of the ID or ASD.
  • ✔ You are interested in providing and updating health information that will be kept anonymous and that will help gaining better knowledge on the genetic condition that affects you child, sister, brother or relative.

Flyer for parents

Flyer for professionals


Join us now!

754 users

373 active participants

Participants' countries of origin

(This chart only takes in account relatives for which we have at least one answer)


  • David A. Koolen
  • Tjitske Kleefstra
  • Kim P.J. Schellekens

Department of Human Genetics, Radboud University Medical Centre, Nijmegen, The Netherlands

  • Bert B.A. de Vries
  • Edward Vernhout

Human Diseases Genes website series